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Library Resources: Genetic Diseases
A Carolina Day School Library Resource Guide
Reference Sources:
General encyclopedias: Britannica,
World Book. REF 031
McGraw-Hill Concise Encyclopedia
of Science and Technology. REF 503 McG
Facts on File Encyclopedia of Science, Technology, and Society. REF 503 Vol
Dictionary of Genetics. REF 575.1 KIN
Magill’s Medical Guide. REF 610 Mag 2001
Cambridge World History of Human Disease. REF 610.9 CAM
Gray’s Anatomy. REF 611 Gra 1973
The Human Body. REF 612 HUM
Body by Design. REF 612 NAG 2000
Mayo Clinic Family Health Book. REF 613 MAY
The New Our Bodies, Ourselves. REF 613 NEW
Textbook of Medicine. REF 616 TEX
Biotechnology from A to Z. REF 660.603 BA
Circulating Books and WEB Resources:
Books on Reserve:
Genome: the autobiography of a species in 23 chapters. 599.93 RID
Genome: the story of the most astonishing scientific adventure of our time--the
attempt to map all the genes in the human body. 616.042 BIS
The Terrible Gift: The Brave New World of Genetic Medicine. 616.042 Car 2002
The Human Genome Project: deciphering the blueprint of heredity. 616 HUM
Books to check out:
~ Try your assigned disease as a keyword to find books or reviewed, reliable
websites on our catalogue (websites have WRL as a call number and can be accessed
directly from the catalogue).
WEB (Web Resource Library) Resources:
~ Don’t forget the reliable Internet resources listed in the CDS catalog.
They are listed with WEB as the call numbers. You can get to the site right
from the catalog.
Articles from Newspapers, Magazines, Reference
Books and more:
The
Student Resource Center
Magazine articles, essays,
statistics. Also available from home. Ask for the URL and password for home
use.
FindArticles.com
“archive of published
articles that you can search for free. Constantly updated, it contains articles
dating back to 1998 from more than 700 magazines and journals... Contains
articles on a range of topics, including business, health, society, entertainment,
sports and more. Unlike other online collections, each of the hundreds of
thousands of articles in FindArticles can be read in its entirety and printed
at no cost.” www.findarticles.com
Free
Web Sites:
WEB resources
(Reliable websites available
on the CDS Online Catalog. Just do a regular search, chose resources with
a WEB call number, click on the “web connect” tab, and you're there!)
How Cells Work (from the
How Stuff Works website) - http://www.howstuffworks.com/cell.htm
This website explains
how cells work. Some additional topics covered include enzymes, DNA, RNA,
cell reproduction, genetic disorders, and biotechnology. Photographs and diagrams
are provided to help explain various concepts. Links to articles and websites
with related information are available.
New Methods for Karyotyping -
http://www.biology.arizona.edu/
Describes a new
method of karyotyping that allows faster identification of human chromosomal
abnormalities. These studies are used in research for gene therapy and in
treating and diagnosing chromosomal disorders. Links to other information
are provided as well as suggestions for further reading.
The following annotated web links are from The
Librarian’s Index to the Internet (http://www.lii.org).
Copyright
2004 by Librarians' Index to the Internet, LII. Try a search
for your disease there.
You
might also want to try other directories such as About.com
(http://www.about.com).
National Human Genome Research Institute (NHGRI) - http://www.genome.gov/
This site from a National Institutes of Health affiliate provides
information on genetics, inherited disease research, genetics and rare diseases,
online resources, and the ethical, legal, and social issues related to genetic
research. There is also information on grant funding, careers and training,
educational resources. Users may submit questions about clinical genetics and
genetic diseases via e-mail or telephone and look at the FAQs for answers to
basic questions.
Blazing a Genetic Trail - http://www.hhmi.org/genetictrail/
The complex subject of genetic testing and treatment of inherited
disorders is made understandable by the straightforward explanations of this
Howard Hughes Medical Institute site. The step-by-step organization and graphics
make it easy to use. There is an overview of basic genetics as well as a glossary.
NBCI: Genes and Disease - http://www.ncbi.nlm.nih.gov/disease/
A good overview of the relationship between genetics and various
diseases. There are several sections: Cancer, Immune system, Metabolism, Muscle
and bone, Nervous system, Signals, and Transporters. Each covers several diseases
and each disease page also provides a gene map, related links, and address for
associations. Additionally, a link to the new, searchable gene map of the human
genome is available on each page. From the National Center for Biotechnology
Information (NBCI).
GeneClinics - http://www.geneclinics.org/
Peer-reviewed articles by experts about inherited diseases. There
are close to 100 diseases profiled. The site is updated regularly and more diseases
will be added. There are links to relevant sites with information for patients.
Users may search the site alphabetically or by disease feature, i.e., part of
the body affected. This is a companion site to GeneTests.
GeneTests - http://www.genetests.org/
This site produced by clinicians and researchers offers information
about genetic disease testing and counseling. It has directories of hundreds
of genetics laboratories and clinics with the Lab Directory searchable by disease,
location, gene, laboratory name, and director and the Clinic Directory searchable
by geography, population served, and specialty. There is also an introduction
to the basic concepts of genetic counseling. Free registration required.
MEDLINEplus: Genetic Disorders - http://www.nlm.nih.gov/medlineplus/geneticdisorders.html
A directory of links to Web resources covering a general overview,
clinical trials, pictures/diagrams, prevention/screening, research, specific
conditions/aspects, treatment, dictionaries/glossaries, news, and organizations.
Also includes links to a few pages in Spanish. From the National Library of
Medicine (NLM).
Your Genes, Your Health: A Multimedia Guide to Genetic Disorders
- http://yourgenesyourhealth.org/
Excellent presentations about fragile X syndrome, Marfan syndrome,
cystic fibrosis, hemophilia, Duchenne/Becker muscular dystrophy, phenylketonuria
(PKU), Huntington disease (HD), sickle cell disease, and hemochromatosis. For
each disease there are explanations of what it is, what causes it, how it is
inherited and diagnosed, video clips of interviews with doctors and patients
about what it is like to have the disease, links to more information, and a
glossary.
Conditions A - Z - http://onhealth.webmd.com/conditions/resource/conditions/index.asp
Easy to understand information on more than 350 diseases and
conditions. A few examples are: acne, albinism, appendicitis, bee and wasp stings,
cataracts, dermatitis, emphysema, fetal alcohol syndrome, frostbite, gangrene,
glaucoma, halitosis (bad breath), heart disease, irritable bowel syndrome, Kawasaki
disease, lactose intolerance, lice, multiple sclerosis, neuralgia, osteoporosis,
panic attack, rosacea, sciatica, stress, tendinitis, tinnitus, ulcers, varicose
veins, warts, and yeast infections. Each topic includes description, symptoms,
causes, treatment, and related articles.
Diseases & Conditions - Librarians' Index - http://lii.org/search/file/diseases_and_conditions
Directory of evaluated and described Web sites on specific health
conditions, syndromes, and diseases.
Diseases, Disorders and Related Topics - http://www.mic.ki.se/Diseases/
Sweden's Karolinska Institute Library and Information Center
provides an extensive collection of Web sites related to diseases, health conditions,
and disorders. The topic list is based on MeSH (the Medical Subject Headings),
but you can use a keyword search using everyday terms.
Mediconsult.com - http://www.mediconsult.com/
Mediconsult provides current and easily understandable medical
information for consumers who want to learn more about any one of approximately
seventy common health problems. Topics covered include AIDS/HIV, attention deficit
disorder, breast cancer, chronic fatigue syndrome, depression, fitness, heart
disease, menopause, men's health, osteoporosis, sleep disorders, stress, travel
vaccinations, and women's health. Also has online, moderated, discussion support
groups and a site-specific search engine for topics not covered in the main
menu.
Mayo Clinic Health Oasis - http://mayoclinic.com/
Well-written and easy-to-understand information on health and
medical topics. The heart of the site is Diseases & Conditions A-Z with
articles covering hundreds of conditions that discuss some of all of the following:
signs and symptoms, causes, risk factors, when to seek medical advice, screening
and diagnosis, complications, treatments, prevention, self-care, coping strategies,
and complementary and alternative medicine. Additionally there's a large section
of Answers from Mayo Specialists, tools for improving your health, in-depth
information on major conditions in the Condition Centers, Drug Information from
the United States Pharmacopeia (USP), and a First-Aid & Self-Care Guide.
Bio Links (Biozone) - http://www.biozone.co.nz/links.html
This site contains over five hundred links covering such topics
as biology, biotechnology, diseases, evolution, and microbiology. Links are
organized into sixteen main topics and sixty-five subtopics that support health
and science education. There are monthly updates listed on the main page.
Diseases, Disorders and Related Topics - http://www.mic.ki.se/Diseases/
Sweden's Karolinska Institute Library and Information Center
provides an extensive collection of Web sites related to diseases, health conditions,
and disorders. The topic list is based on MeSH (the Medical Subject Headings),
but you can use a keyword search using everyday terms.
Healthatoz - The Search Engine for Health and Medicine - http://www.healthatoz.com/
Offers quick access to medical information on the Web. In addition
to a search engine of the annotated and rated directory, you can check Health
Alert for the topic of the month (archived) which takes an important health
topic or disease and offers in-depth coverage.
History of Biomedicine - http://www.mic.ki.se/History.html
This site provides extensive links in theory of biology, history
of diseases, and medical theory and practice. It covers the histories of folk
medicine, traditional Eastern medicine, and Western biomedical theory and practice.
Within these major divisions, resources are arranged chronologically from ancient
to modern times. A resource from Sweden's Karolinska Institute of Medicine.
**Still need more? Ask about the databases from NCLive.**
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